MEDICAL INFO     definition and info     ways to cope    NETWORKING     shared experiences     links and list server     supportive listeners    NEWS & UPDATES     medical updates     national conference     quarterly newsletter     stickler scholarship    CONTACT US

There is no medical cure for Stickler Syndrome, but there's a lot you can do with early identification of these progressive problems. All of these suggestions apply to both children and adults. As the syndrome varies so, it's difficult to say that one might be hit by a problem before another. Hearing should be tested regularly to monitor the possibility of hearing loss. We can't stress enough the importance of checkups by an eye doctor familiar with Sticklers Syndrome. If any problems are suspected, action should be taken as quickly as possible. Don't wait for things to get worse. Treatment for cataracts or detached retinas is undoubtedly infinitely more effective with early identification. Joints should be well supported during any type of sport, but it's probably wiser to avoid contact sports all together if one has very loose joints. suggestions