definition and info
ways to cope
NEWS & UPDATES
What is the film about?
For the first time, an educational film has been created for people living with and affected by Stickler Syndrome (SS) and for health care professionals. This 30 minute film aims to increase awareness of diagnosis, care and treatment of SS and the impact this disease has on individuals and families.
How do I purchase the film?
USA orders should contact:
Stickler Involved People/DVD Order
Augusta, KS 67010
International orders should visit
Who produced the film?
Tina Hahn is an award winning producer at Symmetree Media in Toronto, Canada. She has successfully produced a number of documentaries on other health conditions such as Tourette’s syndrome. For more information please go to
How much will the film cost?
The total cost of the production is ~$80,000.00 Canadian ($64,000.00 US). Copies of the film
have been reproduced on DVD/video and distributed and are being sold at a nominal cost.
To date, I have raised $30,000.00 Canadian. I have achieved this through golf tournaments and events such as spa days and special dinners. These events did not cost me much except time. I now need your help! I will not be able to raise the remaining funds on my own. What ever you can donate would be helpful!
What you can do to support this film.
Donate to SIP with the request that the funds go towards the production of the Stickler Syndrome film. A tax receipt can be provided for donations $50.00 or more.
I look forward to hearing from you along with any comments you may have. Thank you for your support.
Kim Barwise, firstname.lastname@example.org
Mother of 7 year old with Stickler Syndrome