STICKLER INVOLVED PEOPLE (SIP)

SIP is a not for profit organization whose purpose is to educate and give support to all those affected by Stickler syndrome.

Our Mission Statement

The stated purpose of SIP is to edu­cate and give support to people affected by Stickler Syndrome including but not limited to:

(a) Periodic meetings to identify matters of mutual concern, to become aware of important social issues

(b) Conducting educational activities to promote the achievements of the objectives of members.

(c) Establishing working relationships and adequate communication with other public or privates local, state or national organizations in pursuit of common goals.

(d) Communicating to public officials the mutual concerns of the majority of the group.

(e) Collecting and disseminating of information concerning Stickler syndrome and related concerns.